Statement: We want access for all who need PrEP - Equitable access to PrEP Now
National AIDS Trust, Terrence Higgins Trust, PrEPster and 47 other HIV, health and equality organisations are today jointly calling for urgent action to ensure the benefits of the national roll out of PrEP – the HIV drug – means “no community is left behind”.
PrEP (pre-exposure prophylaxis) prevents people getting HIV and is almost 100% effective when taken as prescribed. It provides protection to the many people who continue to be vulnerable to HIV, both in the UK and around the world. The drug has been proven to be cost effective when measured against the cost of lifelong HIV treatment and care.
PrEP has already had an impact on HIV rates in the UK, with Public Health England clear that PrEP, alongside other HIV combination prevention interventions, has played a part in reducing HIV transmission – particularly amongst gay, bisexual and other men who have sex with men (GBMSM).
But PrEP has the potential to do so much more - to be the driving force behind England meeting the target of ending new HIV transmissions by 2030.
Yet, there are major obstacles in the way of this potential.
PrEP can be an important HIV prevention tool for many people at risk of HIV. From gay and bisexual men, to women, Black African and other ethnic minority communities, and trans people.
Yet, these communities are currently not equally benefiting from PrEP.
Whilst awareness and uptake of PrEP in gay and bisexual men is high (but could always be higher), HIV Prevention England has found that Black African men and women are less likely to know about PrEP and may have misconceptions about what it means, who it is for and how to access it. This is despite making up 44% of new heterosexual HIV diagnoses in 2018.
This is not equality. This is not enabling all those who could benefit from PrEP being able to equally access it.
Between 2018-2019, a PrEP Commissioning Planning Group was established, jointly chaired by NHS England and the Association of Directors of Public Health and reporting to the Impact Trial PrEP Oversight Board. The group drafted a document: “Preparing for the commissioning of Pre-Exposure Prophylaxis (PrEP) in England: Recommendations of the PrEP Commissioning Planning Group”. This document was not published, yet it includes important recommendations around ensuring equitable access to PrEP in England that we believe the Government must address.
The burden of HIV is not evenly distributed, nor is the use of PrEP as a method of HIV prevention. The principle of equity – across different risk and demographic groups, and geographically – must be evident throughout routinely commissioned PrEP programmes: from knowledge and creating demand in at-risk individuals (e.g. via targeted health promotion programmes), to access, to uptake, to use, and importantly, in outcomes. In line with this principle, provision of various aspects of PrEP must be proportionate to need.
- A national HIV PrEP programme affords the opportunity to champion equality throughout the delivery of PrEP and strengthen relationships not only with gay and bisexual men but especially other groups at high risk of HIV acquisition who may not otherwise engage with sexual health services.
- A national HIV PrEP programme must go beyond the provision of drugs and adopt a whole system approach which, focusing on individual rights and choice, identifies those at risk of HIV who could benefit from PrEP but who are not accessing it currently; helps those at risk to identify appropriate prevention options; and supports their journey along it.
- A national PrEP programme must also understand and seek to address the structural inequalities that drive inequity in PrEP access. These include working to address community-level, socio-economic and cultural factors.
- To be effective, the comprehensive PrEP programme will need a novel, innovative approach (not just ‘continue’ or ‘within the current’); for activities to occur both within and outside specialist sexual health services where PrEP will be delivered and be undertaken by community organisations and non-GU clinicians.
- Costs of introducing PrEP must include the need for enhanced community mobilisation and engagement, especially for Black African men and women, women of other ethnicities, trans people, younger and BME GBMSM groups, and other underserved groups. It must also focus on increasing awareness of PrEP in young people.
The need for additional pathways to ensure equity of access should consider primary care (including non-traditional delivery e.g. app-based provision of GP services), maternity, and termination of pregnancy services. These services must be co-designed with communities to examine the acceptability of potential pathways to be commissioned as well as looking at delivery. As the national PrEP guidance from BASHH and BHIVA states, “limiting provision of PrEP to level 3 sexual health clinics risks widening health inequalities disproportionately among black, Asian, and minority ethnic (BAME) populations.”
National and local health promotion activity must address the need for additional information on PrEP to facilitate equity of access.
We also support the PrEP Commissioning Planning Group’s recommendation that a national PrEP Equity Audit tool should be used to ensure that no communities are being left behind in accessing PrEP.
For too long, access to PrEP has not been even. With the current roll-out of routinely commissioned PrEP, action must be taken to ensure that all who can benefit from PrEP are aware of it and can access it.
Inequity in access to PrEP is not acceptable.
The statement was devised by the National AIDS Trust, Terrence Higgins Trust, PrEPster, the Children's HIV Association (CHIVA), the trans sexual health group cliniQ, the HIV positive women’s group Sophia Forum and One Voice Network for Black communities. 50 organisations in total have added their name to the statement. Individuals are being invited to add their name to the statement at https://www.tht.org.uk/prep4all.
For more information please contact Joe Lester, Senior Communications Officer – firstname.lastname@example.org / 07384 390 624